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RARE News
RARE News
National Tay-Sachs & Allied Diseases Association hosts first of its kind drug development meeting for GM2
By admin
2 February 2024
RARE News
Get Ready to #ShowYourStripes for Rare Disease Day 2024 29th February: the rarest day of the year!
By admin
1 February 2024
Patient voice
If you want to make God laugh, tell him about your plans
By CONTRIBUTOR
31 January 2024
RARE News
CureDuchenne announces educational events for families and caregivers of individuals with Duchenne or Becker muscular dystrophy
By admin
31 January 2024
RARE News
Sickle Cell Disease Association of America Inc. appoints two to board
By admin
29 January 2024
RARE News
American Kidney Fund announces April 30 as the first annual APOL1-mediated kidney disease (AMKD) awareness day
By admin
26 January 2024
Science & tech
Faster diagnosis for patients with rare diseases
By CONTRIBUTOR
24 January 2024
RARE News
REGISTER NOW for M4RD’s ANNUAL SYMPOSIUM
By admin
23 January 2024
RARE News
New research puts the spotlight on tube feeding
By admin
23 January 2024
RARE News
CureDuchenne Welcomes Patricia Brown as Senior Director of Community Engagement
By admin
23 January 2024
Rare insights
Rare Disease Summit, March 19-21 in Philadelphia, PA, United States
By admin
22 January 2024
RARE News
Project CASK Grant Program now accepting applications
By admin
18 January 2024
RARE News
International Kawasaki Disease Awareness Day: Special Podcast to Illuminate the Importance of Awareness
By admin
17 January 2024
RARE News
Benchmarking report published on “Early and Expanded Access Pathways in Ukraine, Poland, & the Baltic States”
By admin
10 January 2024
RARE News
UK charity PSPA raising awareness in news-style programme
By admin
10 January 2024
Industry Insights
UK report calls for more government input to make cell and gene therapies a true health system priority
By CONTRIBUTOR
9 January 2024
RARE News
IGA celebrates 30th anniversary in 2024
By admin
9 January 2024
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