Patient voice

Patient voice

Let’s talk about sex, baby!

By CONTRIBUTOR

25 October 2023

Charity & advocacy

Do you work for a compassionate employer?

By CONTRIBUTOR

18 October 2023

Industry Insights

Together4RD: making ERN-industry collaboration a key pillar of the future in the rare disease research ecosystem

By CONTRIBUTOR

11 October 2023

A day in the life

A day in the life: navigating our way through the labyrinth of a newly discovered disease

By CONTRIBUTOR

9 October 2023

RARE News

Arthur Suckow, former co-founder and chief executive officer of DTx Pharma, joins CMT Research Foundation board of directors

By admin

5 October 2023

Patient voice

Joshua Ruff: a journey of transformation through faith, family and farming

By CONTRIBUTOR

4 October 2023

RARE News

NHL all-star Ryan Getzlaf and CureDuchenne raise more than $500,000 at 12th Annual Getzlaf Golf Shootout

By admin

29 September 2023

RARE News

CMTUK charity is one of the first UK charities to move from subscription-based membership to a discretionary donation-based charity

By admin

28 September 2023

Charity & advocacy

A Rare Find: upcoming comedy short wants to create conversation around newborn screening

By CONTRIBUTOR

27 September 2023

RARE News

Sickle Cell Disease Association of America holds national convention

By admin

27 September 2023

RARE News

World Orphan Drug Congress Europe 2023

By admin

27 September 2023

RARE News

Cooking challenge to raise funds for muscular dystrophy charity gets the backing of celebrity chefs and celebrities from across the UK

By admin

26 September 2023

Industry Insights

Living well with a rare disease: are we really supporting our community to achieve this?

By CONTRIBUTOR

25 September 2023

Patient voice

Living with cold agglutinin disease: Jörg’s story

By CONTRIBUTOR

25 September 2023

RARE News

Congratulations to the 2023 winners of the Global Genes Open Science Data Challenge

By admin

22 September 2023

RARE News

CureDuchenne launches the CureDuchenne Caregiver Course: a free virtual resource for Duchenne muscular dystrophy caregivers

By admin

21 September 2023

Charity & advocacy

Mitochondrial disease awareness week: let’s move the needle towards effective treatments and cures

By CONTRIBUTOR

20 September 2023

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