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Patient voice
Patient voice
Let’s talk about sex, baby!
By CONTRIBUTOR
25 October 2023
Charity & advocacy
Do you work for a compassionate employer?
By CONTRIBUTOR
18 October 2023
Industry Insights
Together4RD: making ERN-industry collaboration a key pillar of the future in the rare disease research ecosystem
By CONTRIBUTOR
11 October 2023
A day in the life
A day in the life: navigating our way through the labyrinth of a newly discovered disease
By CONTRIBUTOR
9 October 2023
RARE News
Arthur Suckow, former co-founder and chief executive officer of DTx Pharma, joins CMT Research Foundation board of directors
By admin
5 October 2023
Patient voice
Joshua Ruff: a journey of transformation through faith, family and farming
By CONTRIBUTOR
4 October 2023
RARE News
NHL all-star Ryan Getzlaf and CureDuchenne raise more than $500,000 at 12th Annual Getzlaf Golf Shootout
By admin
29 September 2023
RARE News
CMTUK charity is one of the first UK charities to move from subscription-based membership to a discretionary donation-based charity
By admin
28 September 2023
Charity & advocacy
A Rare Find: upcoming comedy short wants to create conversation around newborn screening
By CONTRIBUTOR
27 September 2023
RARE News
Sickle Cell Disease Association of America holds national convention
By admin
27 September 2023
RARE News
World Orphan Drug Congress Europe 2023
By admin
27 September 2023
RARE News
Cooking challenge to raise funds for muscular dystrophy charity gets the backing of celebrity chefs and celebrities from across the UK
By admin
26 September 2023
Industry Insights
Living well with a rare disease: are we really supporting our community to achieve this?
By CONTRIBUTOR
25 September 2023
Patient voice
Living with cold agglutinin disease: Jörg’s story
By CONTRIBUTOR
25 September 2023
RARE News
Congratulations to the 2023 winners of the Global Genes Open Science Data Challenge
By admin
22 September 2023
RARE News
CureDuchenne launches the CureDuchenne Caregiver Course: a free virtual resource for Duchenne muscular dystrophy caregivers
By admin
21 September 2023
Charity & advocacy
Mitochondrial disease awareness week: let’s move the needle towards effective treatments and cures
By CONTRIBUTOR
20 September 2023
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