RARE News

RARE News

Celebrating Rare Disease Day and 40 years of the Orphan Drug Act advocating for rare disease patients and their families

By admin

22 February 2023

RARE News

Project Sebastian is pleased to announce our second annual rare warrior 5 x 5 challenge!

By admin

17 February 2023

RARE News

Three small research grants awarded

By admin

17 February 2023

RARE News

CureDuchenne strengthens philanthropic business development with addition of vice president of corporate and donor relations

By admin

16 February 2023

Turning the tide for rare disease

Aaron Jackson: raising awareness of organ donation, and bringing hope to the transplant community

By CONTRIBUTOR

15 February 2023

RARE News

Sure announced as headline sponsor for Parallel Windsor 2023

By admin

13 February 2023

RARE Ramblings

Richard’s RARE Ramblings: FEAR!

By CONTRIBUTOR

8 February 2023

RARE News

Shining the light on tube feeding

By admin

5 February 2023

Turning the tide for rare disease

A new year brings new opportunities: Global Genes – supporting patients, caregivers, advocates and organisations

By CONTRIBUTOR

1 February 2023

Industry Insights

“Developing positive change in how we diagnose, treat and care for patients with a rare disease.” Rhetoric or reality?

By CONTRIBUTOR

1 February 2023

RARE News

From SMA Europe: We are excited to announce that our OdySMA project is going live!

By admin

1 February 2023

Turning the tide for rare disease

Medics 4 Rare Diseases: reframing rare disease – one Instagram story at a time

By CONTRIBUTOR

25 January 2023

RARE News

Raising awareness and celebrating people with craniofacial differences

By admin

24 January 2023

RARE News

RARE Revolution Magazine publishes new impact report – The impact of RARE diseases on sibling experience

By admin

23 January 2023

RARE News

Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes

By admin

20 January 2023

RARE News

Know your sickle cell trait status, according to new campaign

By admin

20 January 2023

RARE News

Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign

By admin

19 January 2023

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