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Science & tech
Science & tech
Merging the metaverse and the rare disease community: join the conversation
By CONTRIBUTOR
22 September 2022
RARE News
The Dash Alliance and RARE Revolution Magazine – levelling up for RARE
By admin
21 September 2022
Medical
The RAPSODI study: an online study to understand the association between the Gaucher-causing gene and Parkinson’s
By CONTRIBUTOR
14 September 2022
Turning the tide for rare disease
Being a strong father does not mean staying silent in times of trauma
By CONTRIBUTOR
14 September 2022
Turning the tide for rare disease
A ‘bullhorn in stilettoes’: Tisha Foster’s unique approach to raising awareness of hidden disabilities
By CONTRIBUTOR
12 September 2022
Patient voice
Passing on a rare disease: a RARE mother’s journey from ‘blameless guilt’ to joy
By CONTRIBUTOR
5 September 2022
RARE News
The 2022 Jeans For Genes grant programme is now open and inviting applications
By admin
1 September 2022
RARE News
Sickle Cell Disease Association celebrates National Sickle Cell Awareness Month
By admin
31 August 2022
Turning the tide for rare disease
Ms Colorado America 2022: two-time aneurysm survivor and a champion for cardiovascular disease prevention
By CONTRIBUTOR
31 August 2022
Turning the tide for rare disease
Jeans for Genes: raising awareness and funds to help people living with life-altering genetic conditions
By CONTRIBUTOR
29 August 2022
RARE News
Operationalise: Early Access Programmes Summit Europe 18-20th October 2022
By admin
24 August 2022
RARE News
RARE Rev-inar Episode 001 Early Access Programmes
By admin
24 August 2022
RARE News
Rare Disease Nurse Network (RDNN) announces registration as a charity with the UK Charity Commission (Registered Charity Number 1199654).
By admin
22 August 2022
Turning the tide for rare disease
Breast implant illness: a patient’s experiences and her mission to raise awareness and improve care
By CONTRIBUTOR
19 August 2022
RARE News
Parents of Children with Narcolepsy Invited to Participate in Registry
By admin
8 August 2022
Turning the tide for rare disease
My baby’s new prognosis: ‘She will not die’… but what will her life be like and how should I live mine?
By CONTRIBUTOR
8 August 2022
RARE News
Shining the light on eosinophilic diseases
By admin
5 August 2022
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