RARE News

RARE News

Sure announced as headline sponsor for Parallel Windsor 2023

By admin

13 February 2023

RARE News

Shining the light on tube feeding

By admin

5 February 2023

RARE News

From SMA Europe: We are excited to announce that our OdySMA project is going live!

By admin

1 February 2023

RARE News

Raising awareness and celebrating people with craniofacial differences

By admin

24 January 2023

RARE News

RARE Revolution Magazine publishes new impact report – The impact of RARE diseases on sibling experience

By admin

23 January 2023

RARE News

Neuromuscular Disease Foundation’s Dr. Kelly Crowe presented with $20,000 research grant from Uplifting Athletes

By admin

20 January 2023

RARE News

Know your sickle cell trait status, according to new campaign

By admin

20 January 2023

RARE News

Collaboration between Pro Rare Austria and Salzburg University of Education becomes a cornerstone of the global 2023 Rare Disease Day campaign

By admin

19 January 2023

RARE News

Rare Disease Innovation & Partnership Summit

By admin

19 January 2023

RARE News

Cell & Gene Therapy Summit 2023

By admin

18 January 2023

RARE News

PTC Therapeutics launches 9th annual STRIVE™ Awards Program to fund initiatives- benefitting the Duchenne muscular dystrophy community

By admin

18 January 2023

RARE News

“Play the Rare Game for the Rare Ones” kicks off in Parma with the first Rugby match to raise awareness on rare diseases

By admin

6 January 2023

RARE News

The Waiting Room Entertainment’s efforts to bridge the communication gap between patients, organizations and the medical community

By admin

3 January 2023

RARE News

CureDuchenne raises more than $1.5 million at eighth annual Napa in Newport to help find a cure for Duchenne muscular dystrophy

By admin

8 December 2022

RARE News

NFL players spotlight Sickle Cell Disease Association of America

By admin

7 December 2022

RARE News

DEBRA launches £5m fundraising appeal to stop the pain of EB

By admin

16 November 2022

RARE News

Winners of Gene People Awards 2022 announced

By admin

16 November 2022

« Previous 1 … 8 9 10 11 12 … 15 Next »