RARE News

RARE News

All change at Genetic Disorders UK

By admin

2 June 2021

RARE News

It’s NOT Parkinson’s. Progressive supranuclear palsy and corticobasal degeneration

By admin

28 May 2021

RARE News

Non-profit partnership with Illumina aims to reduce the diagnostic odyssey for individuals living with a rare epilepsy

By admin

12 April 2021

RARE News

ShieldUs call to action for our learning disabilities community’s right to life

By admin

1 April 2021

RARE News

Research grant of over 2 million Euro offers new hope for children with rare condition Schinzel-Giedion syndrome

By admin

26 January 2021

RARE News

Reforming Rare Diseases: Why Genetic Alliance UK and Alexion are calling for urgent change to improve patient care

By admin

9 December 2020

RARE News

People with rare neurological conditions need a much better deal says new Neurological Alliance report

By admin

25 November 2020

RARE News

FSD call for innovative research projects in advanced therapies for Dravet syndrome

By admin

19 November 2020

RARE News

Illuminating the path to youth employment

By admin

18 November 2020

RARE News

Ground-breaking patient-led AKU study published in the Lancet

By admin

11 October 2020

RARE News

International Ataxia Awareness Day

By admin

24 September 2020

RARE News

The yellow front door, the beach hut & those patch houseplants!

By admin

16 September 2020

RARE News

Bardet-Biedl Syndrome UK (BBS UK) publish booklet supporting children and young people with Bardet-Biedl Syndrome in learning environments, across the UK

By admin

10 September 2020

RARE News

Leading NIH expert on GNE myopathy joins the Neuromuscular Disease Foundation (NDF)

By admin

1 September 2020

RARE News

Jeff D’Angelo: founder of CHAMP 1 research foundation tells his RARE story

By admin

11 August 2020

RARE News

RARE Revolution Magazine and TREND Community are proud to announce their new partnership, working together to power up the voices of the youth rare disease community

By admin

24 June 2020

RARE News

Launching RARE Youth Revolution platform

By admin

18 June 2020

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