RARE News

RARE News

Neurocrine Biosciences launches WHAT THE C@H?! educational initiative to support congenital adrenal hyperplasia community

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1 May 2024

RARE News

Survey launched for UK-based rare disease patient advocacy groups on gene therapy decision aids

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30 April 2024

RARE News

DEBRA UK partners with the Cancer Research UK Scotland Institute to tackle early-onset cancer in patients with RDEB

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25 April 2024

RARE News

NCBRS Worldwide Foundation announces inaugural “UNITED AGAIN” Family Conference – UK 2024

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23 April 2024

RARE News

DREAMS: a new Horizon Europe project brings hope to rare disease patients

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12 April 2024

RARE News

Multidisciplinary expert panel explores the necessity to “shed light” on rare and undiagnosed diseases: an invitation to attend a live event at Harvard Medical School, in-person or virtually

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10 April 2024

RARE News

AKU Society launches Global Patient Registry to drive research into ultra-rare disease alkaptonuria

By admin

10 April 2024

RARE News

New report: If Only You Knew

By admin

10 April 2024

RARE News

Nxera Pharma joins the World Orphan Drug Alliance

By admin

9 April 2024

RARE News

Eurordis to host 12th European Conference on Rare Diseases and Orphan Products (ECRD 2024)

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4 April 2024

RARE News

Miami community comes together for CureDuchenne, raising nearly $2.5M since 2021

By admin

3 April 2024

RARE News

SMA Europe launches its 12th call for research

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3 April 2024

RARE News

Sickle Cell Disease Association of America promotes Kevin Amado Jr.

By admin

27 March 2024

RARE News

Rare Disease Day 2024 – Call for greater awareness of X-linked adrenoleukodystrophy and cerebral adrenoleukodystrophy

By admin

20 March 2024

RARE News

Rare disease advocates learn to accelerate therapeutic development at 9th RARE Drug Development Symposium

By admin

19 March 2024

RARE News

Alnylam launches Hereditary ATTR (hATTR) Amyloidosis campaign to help shorten diagnosis time

By admin

19 March 2024

RARE News

New primer highlights latest understanding of rare inherited disease alkaptonuria

By admin

19 March 2024

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