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RARE News
RARE News
Specialty pharma expert adopts name of global parent to reflect breadth of offer that brings a rare and special perspective to the market
By admin
2 May 2023
RARE News
PIP-UK Poland syndrome charity launches new podcast series: What about PS? A Poland Syndrome Podcast
By admin
30 April 2023
RARE News
Survey shows 60% of people living with progressive supranuclear palsy and corticobasal degeneration are initially misdiagnosed
By admin
28 April 2023
RARE News
What is Quality of Life (QoL) for people living with a rare disease?
By admin
24 April 2023
RARE News
National health charity, CMTUK, is to host Charcot-Marie-Tooth conference on 21–22 April 2023
By admin
21 April 2023
RARE News
May Movement Challenge – Free adaptive and accessible online exercise
By admin
17 April 2023
RARE News
8th annual RARE Drug Development Symposium – May 1-3, 2023
By admin
7 April 2023
RARE News
Rare disease warrior Pamela Price ran 340 miles from LA to Las Vegas with Team Unlimited Women
By admin
28 March 2023
RARE News
The Patient Centricity & Engagement Conference – 10th May – London
By admin
17 March 2023
RARE News
The Pharma Social Media Conference – 11th May – London
By admin
17 March 2023
RARE News
Sickle Cell Disease Association of America to promote clinical trials
By admin
16 March 2023
RARE News
RARE Youth Revolution announces new genetics and relationships project — ‘My life, my genetics’
By admin
28 February 2023
RARE News
Operationalize: Expanded Access Programs Summit (March 21-23, 2023, Boston, MA)
By admin
24 February 2023
RARE News
Celebrating Rare Disease Day and 40 years of the Orphan Drug Act advocating for rare disease patients and their families
By admin
22 February 2023
RARE News
Project Sebastian is pleased to announce our second annual rare warrior 5 x 5 challenge!
By admin
17 February 2023
RARE News
Three small research grants awarded
By admin
17 February 2023
RARE News
CureDuchenne strengthens philanthropic business development with addition of vice president of corporate and donor relations
By admin
16 February 2023
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